One photo reminded me how many people I’ve lost to AIDS

As I picked the photograph off the desk, my heart stopped.

There were seven of us in it – but I suddenly realised, within five years of it being taken, only three of us were still alive.

It was taken in the summer of 1989, at the end of an AIDS conference we had been attending. We had our arms around each other, all smiling and ready for a big night out.

The picture was old and a little blurry, but filled with life.

It was February 2025 and I was at the Bishopsgate Institute in London. I looked up at the others who, like me, were sorting through photos from the past 40 years of the HIV epidemic stored in the archive of the Terrence Higgins Trust.

In the calm and quiet, there were gasps of recognition of faces remembered, followed by a struggle to connect names, places and events.

We were young when AIDS began to devastate our generation – and all of us in the room that day had volunteered or worked for Terrence Higgins Trust in the early years of the epidemic. We had been fighting for our lives while creating a dynamic range of services supporting those who were getting sick and dying.

Now in our 60s and 70s, we’re helping preserve that history by sifting through photos, identifying the faces of those who led the community response to the virus and the prejudice, hostility, and fear that surrounded it.

So many faces which, unlike ours, had not had the chance to get old.

Many of us there that day had journeyed a long way to arrive at Terrence Higgins Trust.

As a gay teenager in the early 1970s, homosexuality was completely hidden where I lived in West Somerset, and only a little less hidden at the university I attended – Keele, in the countryside near Stoke-on-Trent. Which at least had the benefit of leaving me plenty of time to concentrate on my degree.

It was only when I moved to London in 1978 that I made my first gay friends, came out to my family and fell in love.

While I’d been a very happy teenager, coming out felt like my world changed from monochrome into glorious technicolour, vibrant and full of potential.

In the early 1980s, I moved to Amsterdam, the gay capital of Europe and an oasis of tolerance in an otherwise hostile world.

The bars and clubs were fabulous, but by 1984 the dark cloud of AIDS had begun to cover the sky, and I returned to London. I was angry there was so little concern about the growing number of AIDS deaths amongst gay men; and I realised, if anything was to be done, we would have to do it ourselves.

Terrence Higgins Trust was the first UK HIV organisation, set up in memory of Welshman and Heaven DJ Terry Higgins, one of the first to die from AIDS-related illnesses in 1982.

By 1985 Terrence Higgins Trust was able to advertise for two full-time members of staff. I was appointed office administrator, alongside Janet Green as counselling administrator.

We had two small rooms, rented by the week, in a ramshackle office warehouse, just off the Gray’s Inn Road. One room housed the Helpline and Buddy service – the other, everything else. Around 300 volunteers worked in groups focused on health education, social services, legal services, drug education, communications and fundraising.

The next eleven years were a rollercoaster ride of activism, passion, growth, success, failure, funerals, hopes raised and dashed, bravery, courage, determination, burn-out and resilience as we struggled to contain the ever-growing epidemic.

Then, in 1996, a new combination of drugs was shown to control the virus.  At last, we could look forward to living with HIV, however difficult that might be, rather than dying from it.

This was too late for so many people, though.

The breakthrough was announced in July 1996, in Vancouver, Canada. During that conference, Paul – the handsome, talented, man who ran our Hardship Fund – died in London. It was only eight months after he had first become ill. AIDS could be terrifyingly fast.

He was just 29 years old.

I led his funeral: amid the swirling emotions of sadness, loss and grief, there was also real hope for a better future.

Now, gathered in the Bishopsgate Institute that day in February, around the tables overflowing with photographs and memories, we are some of those who have lived to see that future.

In 2025, over half of people living with HIV take one pill a day. With that treatment, they can expect to live as long as anyone else, and cannot pass on the virus to others if their viral load is undetectable – even during sex.

The UK is committed to ending new HIV cases by 2030. Hard fought campaigns have succeeded in delivering effective medication to people living with HIV in some of the world’s poorest countries – although progress is fragile, as the recent freeze on US foreign aid has shown.

As we put the photos back into their folders, I knew this was still an incomplete archive of Terrence Higgins Trust. I imagined what it might feel like in ten, twenty, thirty, or more years’ time, when we’ve finally ended this epidemic and the stigma that so many people living with HIV still face.

We have come this far and achieved so much. One day we will be able to fully close the archive – but I will still remember the faces from the photographs of those we lost.

Do you have a story you’d like to share? Get in touch by emailing jess.austin@metro.co.uk. 

Share your views in the comments below.